Let me start today’s blog with a big thank you to everyone
that has been praying for Jamil. He
continues to appear well and to adjust to living in the USA.
This past week, we took Jamil for a regular visit to see a
pediatrician in Oklahoma City. He was
started on a vaccination schedule to get caught up for years of being
behind. He did not like the 4
vaccination shots that he received in addition to the PPD skin test that was
placed. He will have to get a few more
in November.
On Wednesday, Jamil had an appointment with a pediatric
oncologist. This is a doctor at OU that
is well acquainted with Neurofibromatosis type 2, as her sister had this. She also has recently treated a young man
with an ocular meningioma, like Jamil’s.
She reviewed his files and got his history the best that we could relay
it. Following that visit, she took all
of his information and scans to “Tumor Board” for the review of all of the
cancer doctors, radiologists and surgeons.
As they reviewed his old CT scans, they could see the tumor in his
cavernous sinus as far back as 2012, when we first met him. This news is a little encouraging because
this means that the progression is likely slower than we thought. The consensus of the board was that they
thought we should take a wait and see approach.
There is a scenario where meningiomas will swell after radiation, for up
to a year. This looks like the tumor is
growing, but then starts to recede.
Jamil is just over a year from finishing his radiation that he had in
2013. The doctors at OU would like to
repeat his MRI just before Thanksgiving and see what it is doing. They do acknowledge that the tumor involves
the bones of his face and the cavernous sinus.
This is something that can not necessarily be “cured” by modern
medicine. The progression can be slowed
and sometimes halted.
We intend to employ all that modern medicine has to offer
and add in a heaping dose of prayer to the mixture. Please continue to lift Jamil up in your
prayers. Please pray specifically that
the tumor growth to halt and actually recede.
We spent the weekend with some friends in Hinton and then at the OU game.
We will continue to update the blog as indicated.
#HealJamil
Jay
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